This month Sammy turned one! I simply cannot believe how fast this year has gone. He has grown up so much, yet I still definitely think of him as and treat him as my baby! He has had a quite a year with possible? health problems, lots of new friends, and a crazy brother to get used to.
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| Here are the boys in our playgroup who have birthday at the end of October! A 2 yr old and three 1 yr olds! The awesome cake was made by my friend Bronwyn! |
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| Checking out his cupcake. He wasn't so sure about it. |
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| He didn't even try the cake. Just licked some frosting and played with it. |
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| On the morning of his 1st birthday! |
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| Brother bear giving him a hug and his presents! |
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| Got to do one of his favorite activities! Play on the piano! Every time we sit down to play, he has to come and play too! |
So here is our update on our sweet silly Sam!
Wt: 17lbs (2%ile)
Ht: 28 1/2 in (10%ile)
Head: 50%ile
Sam has been to many many doctors and had many different tests and screens and evaluations done on him to see why he had the fast breathing and the retractions (pulling in while breathing) in his neck and between his ribs. He went to the pulmonologist first. Dr. Moorehead has taken a very active role in Sam's care. Since then, he has also seen a cardiologist, gi doctor, neurologist, a dietitian, physical therapist, and will start seeing an oral/feeding therapist. He has been tested for Cystic Fibrosis, anemia, genetic abnormalities, reflux, swallow test, x-rays and CT scan to look for damage on his lungs.
He has been taking several medications including Prevacid for reflux, Bethanechol for faster stomach motility (to decrease amount he is able to reflux), Flovent HFA given with a spacer (a steroid to decrease inflammation in his lungs). He has also been prescribed Nasonex and Xopenex but has not had to use those on a regular basis.
He has been diagnosed with reflux, low weight gain or even failure to thrive, and missed gross motor milestones.
He is or will be treated with physical therapy for gross motor, feeding/oral therapy for better muscle control in his mouth to get him to eat table foods and different textures better. We have increased his formula to 30kcals/oz instead of the regular 20kcals/oz that it typically provides and also started added formula to EVERYTHING else he eats.
I feel that he is on the mend. He went to his wellness check-up with his regular pediatrician and he said that he seemed to be breathing a lot easier now and his weight is on an upward trend so so he looking good! :)
He has really given us a lot of grief over these health problems, but all I can say is that I am so thankful for modern medicine and the doctors that have worked so hard to try to help him get better. I am also eternally grateful for Medicaid that has allowed us to freely test and evaluate and see specialists with absolutely no thought of cost. It has been so helpful and I will forever be grateful for the help of the government in my life.
So while we aren't at the doctors, we are having a lot of fun playing!
Sam loves music. His favorite toys right now are a musical turtle that plays classical music and lights up and moves slowly. He also likes a light-up music playing cellphone, and a plastic tube thingy from the $ Store. (The one that you fling around and it whistles, but he like to put it to his mouth and talk into it because it kind of echos.) He LOVES books and reading. He also likes to play with his brother in all the pillows from the couch, although brother gets a little rough too often and squishes him with the giant cushions.
He started crawling on his hands and knees right before his birthday. I am so glad that he will no longer have gray shirts from sliding on the ground! He also climbs up on to everything and will cruise around furniture. He is not very close to walking at all, but I am okay with that for now.
His favorite foods are smoothies and yogurt. We have a chocolate or fruit smoothie for breakfast every day. He will also eat gold fish and other crackers pretty well. He likes the taste of meats and fruits and veggies, but is still struggling with swallowing these table foods. Most foods end up in his lap. He still eats baby foods about once a day, but he is getting bored of those and wants to feed himself, making it extra difficult and messy! He is just so messy at mealtimes!
He can say several words and has been saying them for a few months now. He says Mama!, Da! (which means toy or play) Ma! (means eat or food). He shakes his head no. and when he is done eating he waves his hands in front of him while shaking his head no. He also growls with us and crawls around pretending to be a lion. He makes cars fly and makes an engine-like noise while driving them. He has a definite "Cheese" smile for the camera and totally models for pictures. He loves it!
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Happy with his new see and say!
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We love Sam and we are so happy he is part of our family.
-Emily